February/March eBulletin
Welcome to the second edition of Long Term Conditions Alliance Scotland's new look eBulletin! As you know, the Alliance aims to give a voice to the 2 million people in Scotland affected by long term conditions. We believe that using personal stories and real life examples of good practice can help to bring human faces and voices to our work and the work of member organisations.
If you have photographs of individuals living with long term conditions which are representative of the work your organisation does and you would like to share these though this bulletin or the LTCAS website, please let us know. We would be happy to help publicise your work to our members, associates and other stakeholders.
Our new bulletin format allows you to include photos with your articles, so if you have an appropriate picture to accompany your news item, please send this too. All enquiries and comments regarding the LTCAS eBulletin should be sent to nancy.greig@ltcas.org.uk
LTCAS News
First Long Term Conditions Alliance Annual Conference is a huge success!
The first annual conference took place on 23 February at Perth Concert Hall. 200 delegates representing over 100 different organisations, drawn from LTCAS member and associate organisations, government, NHS, private healthcare, councils and voluntary organisations met to explore the question ‘How we can achieve person-centredness for people with long term conditions?'
Nicola Sturgeon MSP, Deputy First Minister and Cabinet Secretary for Health and Wellbeing opened the conference. Her address highlighted much of the work LTCAS has been involved in over the past year, and gave a great overview of the work being done in the voluntary and public sector. Read more
Manifesto for people living with long term conditions now available
Delegates at the the LTCAS Annual Conference will already have had the opportunity to pick up a copy of the Manifesto for People with Long Term Conditions in Scotland. During the second part of 2009 we began work on a new LTCAS manifesto to replace the document we produced in 2007 and we have worked with members to develop this. Read more
LTCAS Online Library
At LTCAS we plan to develop an online library incorporating all member publications. The idea is to pull together everyone’s expertise and allow a single point of access from which visitors to the LTCAS website can gain access to the collective knowledge of our members. Read more
Equalities Training for LTCAS Members
Staff and volunteers in all sectors will be aware of the increasing importance of equalities issues to their work, especially as funders begin to request more information on this topic. For this reason, LTCAS are considering running equalities training courses for our members.
If you would be interested in attending a course, or you would like further information, please contact Susan Young at susan.young@ltcas.org.uk or call 0141 404 0231.
Members' Networking Event – Tuesday 23 March 2010
LTCAS' 100th member, Cancer Support Scotland (Tak Tent) will host the first members’ networking event of 2010. Cancer Support Scotland will give an overview of the services they provide for people with cancer, their families, friends and carers. The event is an ideal opportunity to meet staff and volunteers from other long term conditions organisations and is open to all LTCAS members and associates. Lunch will be provided and there will be opportunities to try out complementary therapies! Read more
News from our Network
Self Management for Men Project Training: "Introduction to self management and gender" - Glasgow on 8, 12, 18 March and 9 April
- Edinburgh on 15 and 22 March
- Stirling on 26 March 2010
The Men’s Health Forum Scotland Self-Management for Men Project, which has been funded by the Self-Management Fund, is designed to deliver free training on the challenges men face around self management of long term conditions, and to support organisations to engage more effectively with men living with long term conditions. Read more
Enquire Annual Conference: ‘Families as Learning Partners’, Hamilton, South Lanarkshire - on 9 March 2010
The Enquire annual conference is an important event for all those with an interest in the education of children with additional support needs. Read more
Patient Information: Moving Beyond Leaflets- Patient Information Forum conference, Birmingham - 11 March 2010
The fifth annual PiF conference, looks at the changes that are taking place in consumer health. Topics include: information standards, NHS inform, information prescriptions and a choice of eight break out sessions. Read more
The Catherine McEwan Foundation Red Hot Ball, Glasgow - 13 March 2010
Glasgow businessman Derek McEwan set up the Catherine McEwan Foundation in memory of his mum, who lost her battle against Crohn's disease at the age of 38.
The Foundation is geared towards helping young people in Scotland with colitis and Crohn's and also works with the National Association for Colitis and Crohn's Disease (NACC). Read more
Council for Healthcare Regulatory Excellence - Free meeting in Edinburgh - 15 March 2010
How are local hospitals, nurses, dentists, doctors or other healthcare professionals regulated? This may only be a question you ask when something goes wrong with your treatment or the treatment of a loved one. You are invited to attend a meeting with the CHRE where you can meet some of the people who can answer this question and who are involved in making decisions that may affect your healthcare. Read more
Cancer Link Aberdeen and North (CLAN) - Ladies' Lunch, Aberdeen - 17 March 2010
CLAN has a very special team of volunteers. The proceeds from this lunch will help fund the volunteer room in their new cancer support centre. Read more
Breakthrough Breast Cancer "Be the Breakthrough Event", Dunblane - 20 March 2010
Breakthrough Breast Cancer is Scotland's leading breast cancer charity and would like to invite you to their first "Be the Breakthrough Event." Read more
Pink Ladies First - Giving women a springboard for change
Free 10 week confidence building course for women experiencing stress, anxiety or depression. Read more
Local Press Opportunity for Charities in Edinburgh
The Herald and Post free paper is undergoing a revamp and are looking for copy. This is an excellent opportunity for voluntary sector organisations based in the Edinburgh area to get some free publicity for their events. Read more
Cancer Support Scotland (Tak Tent) - Do you need help living with cancer?
Cancer Support Scotland are based in the grounds of Gartnavel Hospital in Glasgow opposite the Beatson Cancer Clinic. The charity offers anyone affected by cancer the following FREE services:
- Complementary therapies
- One to one counselling
- Group support
- Up to date information. Read more
Medicines and Healthcare Products Regulatory Agency (MHRA) - Yellow Card Alert
The MHRA is the government agency responsible for ensuring that medicines and medical devices work and are acceptably safe. As part of its ongoing monitoring work, the MHRA and the Commission on Human Medicines (CHM) run the Yellow Card Scheme which collects reports of adverse drug reactions. Unfortunately, they have identified a probelm with the Yellow Card postal delivery service. Read more
International Conference on Support for Self Management of Health, Stirling - 11-13 May 2010
The Alliance for Self Care Research is pleased to announce the 2010 International Conference on Support for Self Management of Health at the Stirling Management Centre, University of Stirling. The conference is being organised in conjunction with LTCAS and the University of Manchester’s National Primary Care Research and Development Centre and will provide a forum for researchers, health experts and policy makers to meet and to discuss their work and its implications. Read more
A Complete Guide to Asperger's Syndrome, Glasgow - 1 June 2010
The Centre for Autism Practice is pleased to bring Professor Tony Attwood and Dr Michelle Garnett to Glasgow for this inspirational seminar on Asperger's syndrome (AS) and higher functioning autism. Read more
Health Rights Information Scotland Focus Groups on draft leaflet for new Chronic Medication Service
Health Rights Information Scotland (HRIS), which offers clear, accurate and up to date information about your health rights and what you can expect from the NHS, wants to consult with individuals living with long term conditions to develop a leaflet about the new NHS Chronic Medication Service.
A researcher working on behalf of HRIS will be facilitating two evening focus groups (5.30-7pm), one at the LTCAS Hub in Glasgow on Tuesday 6 April and another at a venue in central Edinburgh on Wednesday 7 April. Participants must have one or more long term conditions and take regular medication (e.g. repeat or frequent prescriptions). Expenses of £30 will be made available to each participant.
If you are interested in taking part, please contact Nancy Greig on 0141 404 0231 or email nancy.greig@ltcas.org.uk
Long Term Conditions - National Update
ALISS Update
The ALISS Project (Access to Local Information to Support Self Management) has now completed a series of three service-design workshops having held the first in Glasgow on 11 February, the second in Edinburgh on 18 February and the third in Perth on 25 February. The detailed agenda for the event on 11 and 12 March, to be held at the LTCAS Hub in Glasgow is still to be developed. Read more
The Knowledge Network - how to get involved
The Knowledge Services Group (of NHS Education for Scotland) would like to invite you to an event in Edinburgh on 17 March to launch the promotional campaign for The Knowledge Network (formerly the eLibrary) www.knowledge.scot.nhs.uk. Read more
Development of an Employability Training Programme
The Scottish Government's Employability Team have commisssioned a a feasibility study for a national qualification for employability support workers in Scotland and are now at the stage of assessing demand and checking the best shape for such a qualification to meet potential learners' and employers' needs. As employability encompasses self management and helping people to see what they could be capable of, it is likely that such qualifications could be useful to many LTCAS members and associates. Read more
Publications. Read more
Consultations. Read more
Scottish Parliament News
Go to the LTCAS website for all the latest news from the Scottish Parliament.
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